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The organization: goals

The goals of the Association are :

-To group together in the association the persons who are afflicted with familial ataxia and the persons who are involved on a personal level with their support or on a professional level via their care or research.

-To make health professionals, political decision-makers and the population in general aware of the disease as well as its impact on physical and psychological health, on employment and on the financial aspects of the afflicted persons.

-To promote, protect and develop the economic, social, professional and recreational interests of ataxic persons.

-To advance research on familial ataxias in view of intervention as much for the causes as for the effects.

-To inform the members and the partners in activities relating to familial ataxias (research, publications, activities, etc.) by editing a magazine.

-To organize and hold conferences, meetings, and exhibitions for information purposes.

-To generate revenue by means of fund-raising campaigns, activities, voluntary subscriptions, requests for grants, shares, and legacies, in order to realize the mission of the Association.

Thank you.